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  1. Home
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  3. The U.S. (mental) healthcare system is infuriating.

The U.S. (mental) healthcare system is infuriating.

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  • ikuoI ikuo

    At this point, I literally cried in frustration.

    5e. The 5th place (with the most unwieldy website) is where I should have started. I guess don't judge a medical practice by their website. 🤷🏻‍♀️

    A real live person answered the phone! They do offer the service! But alas, since my child is technically adult-aged, they would not allow me to make an appointment.

    8/

    ikuoI This user is from outside of this forum
    ikuoI This user is from outside of this forum
    ikuo
    wrote last edited by
    #9

    6. I fret over the idea of my kid having to manage the new patient phone call themselves because it is a non-trivial task and exactly the type of thing for which they are being referred to this service in the first place.

    Luckily, my kid gets a school holiday for Presidents' Day and would be home from college for a long weekend. I call the practice again and confirm that they will be open on that Monday.

    9/

    ikuoI 1 Reply Last reply
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    • ikuoI ikuo

      6. I fret over the idea of my kid having to manage the new patient phone call themselves because it is a non-trivial task and exactly the type of thing for which they are being referred to this service in the first place.

      Luckily, my kid gets a school holiday for Presidents' Day and would be home from college for a long weekend. I call the practice again and confirm that they will be open on that Monday.

      9/

      ikuoI This user is from outside of this forum
      ikuoI This user is from outside of this forum
      ikuo
      wrote last edited by
      #10

      7. We call together to make the appointment. They tell us how my kid can give permission for me to make appointments for them in the future.

      From beginning to end, the entire process took almost a month, and the initial consultation appointment is a month away.

      I'm just a mom trying to get mental healthcare for my kid, and I think that was TOO many hoops and hurdles for an average person seeking mental healthcare to have to navigate!!

      /end

      LkdcL HuskifyH RobotistryR 3 Replies Last reply
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      • ikuoI ikuo

        7. We call together to make the appointment. They tell us how my kid can give permission for me to make appointments for them in the future.

        From beginning to end, the entire process took almost a month, and the initial consultation appointment is a month away.

        I'm just a mom trying to get mental healthcare for my kid, and I think that was TOO many hoops and hurdles for an average person seeking mental healthcare to have to navigate!!

        /end

        LkdcL This user is from outside of this forum
        LkdcL This user is from outside of this forum
        Lkdc
        wrote last edited by
        #11

        @ikuo1000 I'm sorry. The system is awful. Your kid is very lucky to have a mom who is willing and able to help with the legwork. My heart breaks for all the people who fall between the cracks because they don't have anyone to help them with the endless phone calls and research.

        ikuoI 1 Reply Last reply
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        • LkdcL Lkdc

          @ikuo1000 I'm sorry. The system is awful. Your kid is very lucky to have a mom who is willing and able to help with the legwork. My heart breaks for all the people who fall between the cracks because they don't have anyone to help them with the endless phone calls and research.

          ikuoI This user is from outside of this forum
          ikuoI This user is from outside of this forum
          ikuo
          wrote last edited by
          #12

          @Lkdc Thank you! ❤

          And right?!? If my kid - who is technically an adult and expected to handle such things themselves - actually had to do all that legwork themselves, most likely it either simply would not get done, or else they would have a mental health spiral in the process! As you say, I really feel for those who don't have assistance.

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          • ikuoI ikuo

            7. We call together to make the appointment. They tell us how my kid can give permission for me to make appointments for them in the future.

            From beginning to end, the entire process took almost a month, and the initial consultation appointment is a month away.

            I'm just a mom trying to get mental healthcare for my kid, and I think that was TOO many hoops and hurdles for an average person seeking mental healthcare to have to navigate!!

            /end

            HuskifyH This user is from outside of this forum
            HuskifyH This user is from outside of this forum
            Huskify
            wrote last edited by
            #13

            @ikuo1000 You are basically doing the job of a referral coordinator, but some practices don’t have that staff person. It really is a full time job. I’m so sorry you had that many obstacles to get a mental health referral for your son. It should never be like that, but it’s more of the norm now instead of the exception. US healthcare system is so broken. Every day it’s a disappointment.

            ikuoI 1 Reply Last reply
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            • med-mastodon.comI med-mastodon.com shared this topic
            • HuskifyH Huskify

              @ikuo1000 You are basically doing the job of a referral coordinator, but some practices don’t have that staff person. It really is a full time job. I’m so sorry you had that many obstacles to get a mental health referral for your son. It should never be like that, but it’s more of the norm now instead of the exception. US healthcare system is so broken. Every day it’s a disappointment.

              ikuoI This user is from outside of this forum
              ikuoI This user is from outside of this forum
              ikuo
              wrote last edited by
              #14

              @huskify A "referral coordinator"! 😯 That was the title of the person who gave us the list of outside practices, which ended up being outdated - not only did some places not offer the service, but multiple phone numbers were incorrect too. 😒

              I feel so sad that life has gotten so much harder, not easier, as I've aged. It feels like the enshittification of real life, where nothing is straightforward, everything must be "navigated", and if things actually go smoothly it's a shock. 😪

              HuskifyH 1 Reply Last reply
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              • ikuoI ikuo

                @huskify A "referral coordinator"! 😯 That was the title of the person who gave us the list of outside practices, which ended up being outdated - not only did some places not offer the service, but multiple phone numbers were incorrect too. 😒

                I feel so sad that life has gotten so much harder, not easier, as I've aged. It feels like the enshittification of real life, where nothing is straightforward, everything must be "navigated", and if things actually go smoothly it's a shock. 😪

                HuskifyH This user is from outside of this forum
                HuskifyH This user is from outside of this forum
                Huskify
                wrote last edited by
                #15

                @ikuo1000 It’s called sludge 😡. Good article on customer service today in the Atlantic: http://archive.today/XrBiB

                ikuoI 1 Reply Last reply
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                • HuskifyH Huskify

                  @ikuo1000 It’s called sludge 😡. Good article on customer service today in the Atlantic: http://archive.today/XrBiB

                  ikuoI This user is from outside of this forum
                  ikuoI This user is from outside of this forum
                  ikuo
                  wrote last edited by
                  #16

                  @huskify Wow! What an article. Omg. I feel so seen. Thank you so much for sharing it!!

                  This part is exactly what I fear, that people are so beat down that they give up trying to get what they are legitimately entitled to:

                  "When I started talking with people about their sludge stories, I noticed that almost all ended the same way—with a weary, bedraggled Fuck it... I came to see this as a permanent condition. We are living in the state of Fuck it." ☹️

                  HuskifyH 1 Reply Last reply
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                  • ikuoI ikuo

                    @huskify Wow! What an article. Omg. I feel so seen. Thank you so much for sharing it!!

                    This part is exactly what I fear, that people are so beat down that they give up trying to get what they are legitimately entitled to:

                    "When I started talking with people about their sludge stories, I noticed that almost all ended the same way—with a weary, bedraggled Fuck it... I came to see this as a permanent condition. We are living in the state of Fuck it." ☹️

                    HuskifyH This user is from outside of this forum
                    HuskifyH This user is from outside of this forum
                    Huskify
                    wrote last edited by
                    #17

                    @ikuo1000 OMG. Just read this too. Exactly your son’s case! https://www.propublica.org/article/emblem-health-ghost-network-settlement-mental-health

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                    • ikuoI ikuo

                      7. We call together to make the appointment. They tell us how my kid can give permission for me to make appointments for them in the future.

                      From beginning to end, the entire process took almost a month, and the initial consultation appointment is a month away.

                      I'm just a mom trying to get mental healthcare for my kid, and I think that was TOO many hoops and hurdles for an average person seeking mental healthcare to have to navigate!!

                      /end

                      RobotistryR This user is from outside of this forum
                      RobotistryR This user is from outside of this forum
                      Robotistry
                      wrote last edited by
                      #18

                      @ikuo1000 I'm so impressed you managed to get an appointment at all.

                      When my kid was in high school, I spent a month calling and ended up with a place on a waitlist. Six months later, I called to check and was told that their position on the wait list hadn't changed and it would be at least a year. Three months later they eliminated the wait list without seeing anyone - just called and told us it wasn't a thing anymore.

                      The whole process was like having skin scraped off a little piece at a time.

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