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Tom KindlonT

tomkindlon@disabled.social

@tomkindlon@disabled.social
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Recent Best Controversial

  • The creator of a very popular ME/CFS awareness image has taken feedback on board and updated it
    Tom KindlonT Tom Kindlon

    The creator of a very popular ME/CFS awareness image has taken feedback on board and updated it

    #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs

    Uncategorized mecfs cfs pwme myalgicencephal chronicfatigues

  • From the US:
    Tom KindlonT Tom Kindlon

    From the US:

    Choroid plexus alterations in long COVID and their associations with Alzheimer's disease risks

    https://alz-journals.onlinelibrary.wiley.com/doi/10.1002/alz.71020

    Screenshot from latest Science for ME weekly update

    Hashtags:
    @longcovid
    #LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
    #Coronavirus
    #COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver

    @novid #novid

    Uncategorized longcovid pasc pwlc postcovid postcovid19

  • From Australia:
    Tom KindlonT Tom Kindlon

    From Australia:

    Non-invasive electrodiagnostic testing for small fibre neuropathy in long COVID-19

    https://neurologyopen.bmj.com/content/8/1/e001399

    Screenshot from latest Science for ME weekly update

    Hashtags:
    @longcovid
    #LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
    #Coronavirus
    #COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver
    #SFN

    Uncategorized longcovid pasc pwlc postcovid postcovid19

  • News Release 10-Feb-2026"Long COVID linked to Alzheimer’s disease mechanisms: Diseases cause damage in some of the same ways"
    Tom KindlonT Tom Kindlon

    News Release 10-Feb-2026
    "Long COVID linked to Alzheimer’s disease mechanisms: Diseases cause damage in some of the same ways"

    https://www.eurekalert.org/news-releases/1115717

    New US research.

    Full paper:
    https://alz-journals.onlinelibrary.wiley.com/doi/10.1002/alz.71020

    Hashtags:
    @longcovid
    #LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
    #Coronavirus
    #COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver

    @novid #novid

    Uncategorized longcovid pasc pwlc postcovid postcovid19

  • Living with #MECFS
    Tom KindlonT Tom Kindlon

    Living with #MECFS

    All of these things can be out of reach, or close to, for some #MyalgicEncephalomyelitis patients. Some will be able to attain some of these things at certain points during their illness.

    From Lu Baker Art https://instagram.com/lubakerart
    (repeat)

    #CFS #PwME #ChronicFatigueSyndrome @mecfs

    Uncategorized mecfs myalgicencephal cfs pwme chronicfatigues

  • Extract from "An Essay on Living with Severe ME"https://virology.ws/2026/01/27/trial-by-error-an-essay-on-living-with-severe-me
    Tom KindlonT Tom Kindlon

    2/‬
    ‪"I can choose to exceed my limits, but I can’t choose to recover from exceeding them, and telling me to try is like telling a diabetic who’s‬ ‪being forced to eat a box of fudge to “try” not to become hyperglycaemic"‬

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #PEM
    @mecfs

    Uncategorized mecfs cfs pwme myalgicencephal chronicfatigues

  • Extract from "An Essay on Living with Severe ME"https://virology.ws/2026/01/27/trial-by-error-an-essay-on-living-with-severe-me
    Tom KindlonT Tom Kindlon

    Extract from "An Essay on Living with Severe ME"
    https://virology.ws/2026/01/27/trial-by-error-an-essay-on-living-with-severe-me

    Blog post written by someone living with very severe ME but most of the points are pretty general, relevant for people of all severities

    #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs

    Uncategorized mecfs cfs pwme myalgicencephal chronicfatigues

  • I saw this 36-page booklet recommended for people with disabilities & chronic illnesses as well as older people but haven't read.
    Tom KindlonT Tom Kindlon

    2/
    Table of contents for a free 36 page-booklet

    Also at the link are the AARP HomeFit Guide worksheets

    https://www.aarp.org/livable-communities/housing/info-2020/homefit-worksheets.html

    #Disability #Spoonie #ChronicIllnesses #Spoonies
    #ChronicallyIll

    Uncategorized disabled chronicillness chroniclife chronicpain spoonielife

  • I saw this 36-page booklet recommended for people with disabilities & chronic illnesses as well as older people but haven't read.
    Tom KindlonT Tom Kindlon

    I saw this 36-page booklet recommended for people with disabilities & chronic illnesses as well as older people but haven't read.

    https://www.aarp.org/livable-communities/housing/info-2020/homefit-guide-download.html

    Not sure whether it is mainly of use to those in the US or whether it is pretty international?

    #Disabled #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll
    #Disability

    1/

    Uncategorized disabled chronicillness chroniclife chronicpain spoonielife
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