The creator of a very popular ME/CFS awareness image has taken feedback on board and updated it
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs
The creator of a very popular ME/CFS awareness image has taken feedback on board and updated it
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs
From the US:
Choroid plexus alterations in long COVID and their associations with Alzheimer's disease risks
https://alz-journals.onlinelibrary.wiley.com/doi/10.1002/alz.71020
Screenshot from latest Science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver
From Australia:
Non-invasive electrodiagnostic testing for small fibre neuropathy in long COVID-19
https://neurologyopen.bmj.com/content/8/1/e001399
Screenshot from latest Science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver
#SFN
News Release 10-Feb-2026
"Long COVID linked to Alzheimer’s disease mechanisms: Diseases cause damage in some of the same ways"
https://www.eurekalert.org/news-releases/1115717
New US research.
Full paper:
https://alz-journals.onlinelibrary.wiley.com/doi/10.1002/alz.71020
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver
Living with #MECFS
All of these things can be out of reach, or close to, for some #MyalgicEncephalomyelitis patients. Some will be able to attain some of these things at certain points during their illness.
From Lu Baker Art https://instagram.com/lubakerart
(repeat)
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"I can choose to exceed my limits, but I can’t choose to recover from exceeding them, and telling me to try is like telling a diabetic who’s being forced to eat a box of fudge to “try” not to become hyperglycaemic"
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #PEM
@mecfs
Extract from "An Essay on Living with Severe ME"
https://virology.ws/2026/01/27/trial-by-error-an-essay-on-living-with-severe-me
Blog post written by someone living with very severe ME but most of the points are pretty general, relevant for people of all severities
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs
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Table of contents for a free 36 page-booklet
Also at the link are the AARP HomeFit Guide worksheets
https://www.aarp.org/livable-communities/housing/info-2020/homefit-worksheets.html
#Disability #Spoonie #ChronicIllnesses #Spoonies
#ChronicallyIll
I saw this 36-page booklet recommended for people with disabilities & chronic illnesses as well as older people but haven't read.
https://www.aarp.org/livable-communities/housing/info-2020/homefit-guide-download.html
Not sure whether it is mainly of use to those in the US or whether it is pretty international?
#Disabled #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#Disability
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